My name is Lisa, i am 35 yrs old, born in ohio and was diagnosed
with glanzmanns at age 13. My mother only carried me for 6
months and went into unstoppable labor. At birth i had spit
up some old blood, the dr. didn't pay too much attention thought
that i'd just swallowed something prior to birth. About 3-4
hours later i spit up some bright red blood, the nurses called
the dr. and he returned to the hospital, did some blood work,
called children's hospital and we assume he was speaking to
a hemotologist. Within another 3-4 hours i was being transported
to children's hospital in cincinnati,ohio. Upon arrival, iv's
were placed in my head and more extensive blood work was being
another couple episodes over the next few days of me spitting
up bright red blood, after a week or so with no more episodes
they sent me home with my mom.
At 3-4 months
of age i broke out with peticiki(spelled wrong) all over, i was
taken back to children's hospital. They couldn't find nothing
wrong so was sent home again. At 6-7 months of age more bruises
were present than that of a normal toddler. At 13 months old i
fell down 3 steps and had a mild concussion, was taken to children's
hospital, they did a bleeding time and found it was longer than
usual but sent me back home. At 16 months old i was chewing on
my feet,lol, cut my tounge on toenail, had a massive clot the
size of a large coffee mug on end of my tounge, was taken to children's
hospital for several days.
No more major
upsets till i was 3 yrs. old and the nosebleeds began,also was
diagnosed with iron deficiency anemia and treated with iron ever
since then, was taken back to children's hospital and was seen
by a hemoltologist from england that was in town for a convention,
he found everything to be undetermined but knew there was something
serious wrong. Had several massive nose bleeds and was diagnosed
At age 5,
the worst nose bleed, had to have multiple red cell transfusions
and a complete blood exchange and also several platelet transfusions.
Ultimately until i was 13 yrs old, they really didn't know. I
had the septrum removed from my nose to stop the nose bleeds,
but didn't stop them.
At age 13,
i had massive bleeding from my menstrual cycles, was treated with
birth control pills and the periods became normal. Always had
gum bleeding through these times as well.
At age 24,
i began having panic attacks, and was dignosed with panic disorder
and depression which triggered GI bleeds. I was having GI bleeding
about 7-11 times a year and would be treated with red cell and
platelet transfusions. I was put on nerve meds and antidepressants
and also prevacid. I still take nerve meds and the prevacid and
have only had 4 GI bleeds in last 2 and a half years.
It was very
comforting to find this site and see others like myself, we are
a rare breed!,,lol. Good luck to everyone and hope to become acquainted
with some or all of you.
All My Best,